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South Bay Magazine Gavin pictured!

South Bay Magazine Gavin pictured!

Okay, I am one P R O U D Mama!  For many reasons, but in this particular instance I am smiling because my cleft kiddo was asked to be part of a photo shoot his orthodontist was doing for an article South Bay Magazine was featuring her in for her incredible work with cleft kiddos and children with many different craniofacial anomalies.  He is proud of his smile and so are we.  He is the littlest guy in front; white…

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Expander #3. Seriously.

Expander #3. Seriously.

Well, we ended up getting to our 3rd palatal expander with Gavin.  The left bracket kept breaking apart in the same location due to his inability to leave crap alone.  The 3rd expander our ortho built with more anchors so that it could be rigid and not allow for him to keep messing with it AND worked for almost 4 weeks!  We were able to turn it every night and then the night before our appointment, guess what?  “Mom, my…

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Phase 1 Orthodontic Treatment (Palatal Expander)

Phase 1 Orthodontic Treatment (Palatal Expander)

Nothing can really prep you for the pain your child is about to embark on because of his/her cleft palate and the need for Phase 1 of Ortho Treatment.  Just to the words, Rapid Palatal Expander sound scary.  It seems overwhelming at first and it really is.  So much information!  Thankfully we have a great team and access to his team Social Worker. Everyone helped us to figure how to talk to him and get him to understand all that…

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1 week with a Palatal Expander AND broken!

1 week with a Palatal Expander AND broken!

Yup, you read that right, the palatal expander lasted for one whole week!  We even went on vacation with our water pik in tow and wouldn’t you just have guessed that the night before our follow up appointment with the ortho, my 8 y.o. walks into my room and says, “mom, something’s not right with my expander.”  I get up to look and can clearly see one side of the expander just hanging down and not at all attached!  I’m…

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Check up and eventual bone graft surgery

Check up and eventual bone graft surgery

Well, the time has come for Gavin to have his annual Cleft Palate Center team check up and to see where we are at in progressing towards his eventual bone graft surgery.  It was a loooong day for all of us.  We made the trek to Santa Monica and it only took over an hour to get there with all of the a.m. 405 traffic. Sigh. Gavin was seen by his nurse, surgeon, dentist, orthodontist, pediatrician, speech pathologist and social worker….

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Speech, To Take a Break or Not?

Speech, To Take a Break or Not?

Our son was born with a bilateral cleft lip and palate (BCLP) and has been in speech therapy since he was 18 months of age.  I value private speech therapy and we are faithful in keeping our weekly appointments, incorporating speech techniques at home to gain consistency and working on a great deal of repetition. It’s just that at this point we have now added orthodontic appointments to our ‘have to’ weekly list and he has a palatal expander and…

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First Days in NICU

First Days in NICU

After our little guy was born he was whisked away by doctors and nurses for tests, monitors and a quick exit to the NICU (Neonatal Intensive Care Unit). I had an epidural so I was not able to go to the NICU until the doctor gave me an all clear, which meant 24 hours. Talk about highly irritated. I really wanted to see my baby and they wouldn’t let me out of my room until I could pee on my…

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Tongue Tied or Knot?

Tongue Tied or Knot?

Our son’s tongue is tied, but not so much so that his plastic surgeon or speech therapist recommends that he have surgery to clip the frenulum (tissue that is connected to the underside of his tongue) right away.   When our son sticks his tongue out the tip of his tongue gets pulled into a “V” shape and he calls this his lizard tongue. His surgeons tell us he is tongue tied. Thankfully, our surgeons understand and agree that there…

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Dental Appt Update

Dental Appt Update

Our little guy had his 6 month dental check up with our favorite dentist, Dr. Frank Enriquez!  He got to put the purple tablet in his mouth that dauntingly showed where it is that he needs to be brushing better…shudder… As his mom, I know the purple tablet is “judging” me and letting everyone in the dental office know that we are not enforcing the flossing like we should be and we are not being as diligent about making him…

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