GEN-01 This is a link that will take you to a booklet published by the Cleft Palate Foundation and is a great resource of information regarding genetic testing, causes and treatments of cleft lip and/or palate. Like the many families of children with birth defects, the CDC wants to find out what causes them. Understanding the factors that can increase the chance of having a baby with a birth defect will help us learn more about the causes. CDC coordinates,…
The first thing you must understand is that you are going to experience an ear infection with your cleft baby. There is a reason for this. Please click on the link and you will be redirected to the Cleft Palate Foundation’s booklet that explains in depth why cleft babies are more prone to ear infections. The first time I noticed something was not right with our little guy’s hearing he was approximately eight weeks old. I had finished feeding him…
Choosing a “team” for you child and family is an important first step in planning your care from this point forward. Our experience was a frustrating one. I am the type of person that needs to have a plan. I need to know what steps I am taking before I take them and I have everything written down. You guessed it, I also have a pro/con list for most all things I am tackling! I searched websites for information and…
