At this point we have been making great strides in our development. Gavin recovered from his lip repair surgery fairly quickly and we continued on as any other family. There was tummy time, he began rolling over, pulling himself up and before we knew it he was coming up on 10 months of age. His cleft palate repair surgery had already been scheduled and we knew of our countdown date. This surgery (cleft palate repair) was going to be…
After our little guy was born he was whisked away by doctors and nurses for tests, monitors and a quick exit to the NICU (Neonatal Intensive Care Unit). I had an epidural so I was not able to go to the NICU until the doctor gave me an all clear which meant 24 hours. Talk about highly irritated. I really wanted to see my baby and they wouldn’t let me out of my room until I could pee on my…
Our son needed to be 3 mos. of age, minimum 10 lbs. and have no sign of a cold or infection in order to continue with the scheduled cleft lip repair surgery. These first three months were exhausting, as they are with any new parent but especially so with an infant that has special needs. We kept our little one healthy and with doctors visits weekly to both his pediatrician and Cleft Care Team it was definitely hard to keep…
The first thing you must understand is that you are going to experience an ear infection with your cleft baby. There is a reason for this. Please click on the link and you will be redirected to the Cleft Palate Foundation’s booklet that explains in depth why cleft babies are more prone to ear infections. The first time I noticed something was not right with our little guy’s hearing he was approximately eight weeks old. I had finished feeding him…
